Publications

 

Deliverables

  • D1.1 – Selected End Users (Public Report, 07 October 2013)
    This deliverable reports the work done in task 1.1 “Identification of end users”, part of the Work Package 1: “Requirement Analysis and Identification of User Scenarios”. We introduce the methodology jointly elaborated by the WP1 partners. It defines how to present the project to potential end-users or “gate keepers”, to identify relevant participants and recruit prospective end-users for the different project phases along the development of the CarePortfolio. The documents, which have been used to present the project and to support the coordination among the project members, are provided in Appendix.
  • D1.2 – Report on the end-users’ context and everyday life (Public Report, 21 November 2013)
    Following the aim described in the project, the consortium has decided to follow a User-Centred Design (UCD) process powered by ethnographically-informed studies. In this deliverable we report about the work done in task 1.2 “Pre-Study”, part of the Work Package 1: “Requirement Analysis and Identification of User Scenarios”, and describe in detail the used methodology and the results of the thematic data analysis. T1.2 follows the work done in task 1.1 “Identification of End-Users” and its outcome enables us to begin with confidence the work for the T1.3 (Identification of Use Cases).
  • D1.3 –  Use cases (Public Report, 30 June 2014)
    This document contains all relevant information concerning the identification and definition of use cases. Based on the results of the pre-study, UTT, USI, and TUW developed the use cases and check their pertinence with the end-users during focus groups and individual interviews. This document follows, therefore, the information gathered during the pre-study with our participants. Following to the end-user participatory design sessions the industry partners (ILOGS, WEBINAGE, SOPHIA, AVINOTEC) performed a technical requirements analysis and a feasibility assessment by bringing in designers’ knowledge of technological possibilities for the final use cases. These use cases will be used for further mock-ups creation and prototyping.
  • D1.4 – Ethics manual (Public Report, 31 July 2016)
    The aim of this deliverable is both for the TOPIC consortium to reflect on the approach that was adopted in the project and the platform that was developed from an ethical perspective, and also to give practical advices for researchers, practitioners or companies which are involved in AAL projects. The intention is to help them making decisions when designing services with and for elderly people. This deliverable is the result of Task T1.4 (Ethical Roadmap), aiming at generating guidelines on ethical aspects for the whole project and analysis of ethical considerations in all three participating nations (Austria, France and Germany). Research projects that adopt Living Lab methodology should take into consideration several moral and ethical issues dealing with personal freedom, autonomy, privacy, and responsibility. The ethical issues can be categorised into two strands: the ethics of the process and the ethics of the product (Ikonen et al., 2000). This deliverable is therefore structured as follows: first, we will describe the ethical concerns raised by the methodology that we have adopted (see “D1.2: Report on the end-users’ context and everyday life” for pre-study, “D2.2: Mock-ups” for designing the platform, and “D4.1: Evaluation plan” for evaluation). We will particularly focus on three main characteristics of our methodology: the Living Lab approach, the end-user perspective, and the ethnographic study. Then, we will refer to the regulation, globally in Europe first, but we will also address the specificity of our three countries. We will then systematically inspect the developed TOPIC CarePortfolio to be aware of potential ethical concerns. Finally, we will provide guidelines for future practitioners who will decide to rollout the platform, and more generally for consortia of future AAL projects.
  • D2.1 –  IT specification and architecture (Public Report, 31 October 2014)
    This deliverable describes an extended view of the baseline architecture of the TOPIC CarePortfolio. It has been developed considering the requirements identified and described in D1.3 in WP1. TOPIC CarePortfolio is designed and engineered mainly for mobile devices. Mobile devices can be Tablet, PCs, or Smartphones. For technology dependent features that are not available in mobile web browsers, the support is limited to Android OS based devices. For special use cases, we also intend to include tangible devices as the just evolving “Smart watch” class. The server environment consists of several modules running on separate virtual servers protected by a firewall.
  • D2.2 – Mock-ups  (Restricted Report, 29 April 2014)
    This document contains all relevant information concerning the personas, use case scenarios and sketches (mock-ups) from an end-user perspective. This document follows the information gathered during the pre-study with our participants – see D1.1 Selected end-users and D1.2 Report on the end-users’ context and everyday life. Therefore it contains specific functional requirements and does neither go into the details of non-functional requirements nor does it come up with the implementation issues. These topics will be covered by upcoming deliverables. For more information please contact Hilda Tellioglu.
  • D2.3 – Prototypes (Restricted Report, 31 December 2014)
    This document references the initial TOPIC software prototype, which has been built following the system architecture outlined in “D2.1 – IT specification and architecture” and the requirements defined in WP1. The prototype was also extensively used in the projects mid-term review – which took place on the 16th December 2014 – to demonstrate the status of our design and development progress. The prototype was available on https://topo-head.ilogs.com/ for evaluation. It is already tested within the consortium. Some parts of it is going to be evaluated by the users in usability studies and discussed in focus groups in all three countries. In this deliverable the features of the platform were summarized by showing screenshots of the main interfaces. The real interactive prototype was accessed online. For more information please contact Hilda Tellioglu.
  • D2.4 – Final CarePortfolio (Restricted Report, 31 March 2016)
    This document presents the final version of the TOPIC CarePortfolio with its components and user interfaces. It is based on two deployments of the system: the German version that is used by Austrian and German participants in available at topo-de.ilogs.com, and the French version at topo-fr.ilogs.com. For more information please contact Hilda Tellioglu.
  • D3.1 – Contents and services of the CarePortfolio (Public Report, 22 December 2014)
    This deliverable describes a first definition of the content for the TOPIC CarePortfolio. For the success of the project – which has a clear goal of community building – the content plays a similarly important role compared with technical development of the TOPIC CarePortfolio itself. This document works as a starting point for the collaborative process of defining the contents of the TOPIC CarePortfolio.
  • D3.2 – Updates with respect to the end-user needs  (Public Report, 1 July 2015)
    This deliverable builds upon document D3.1 and its first definition of the content for the TOPIC CarePortfolio. Due to our research concept (Participatory Design and the user-centred design approach), the feedback of the involved end-users in regard to the first prototype and the presented content plays a major role for our technical development of the TOPIC CarePortfolio. In D3.2 we will described the preliminary results of the process of defining and updating the contents of the TOPIC CarePortfolio over the last months. We closely collaborated with partners from WP4 (Evaluation) to extract content-related requirements from the empirical data gathered in WP4. As of the current reported status of version 0.1 (Mid May 2015), the update is based on the empirical data gathered in usability tests that have been conducted in all three countries (Germany, France and Austria). We also collaborated with partners from WP2 (Technical Development) to input certain content to the TOPIC CarePortfolio considering its current offering, e.g., in forums. We also collaborated with partners from WP2 to provide certain content to the TOPIC CarePortfolio according to the current features that the platform offers, e.g., an area where caregivers can exchange tips and advices, another are where they can organise themselves in group according to common interests, and so forth.
  • D3.3 – Methodologies and assessments (Public Report, 30 November 2015)
    This deliverable describes the specific measures, tools, and services developed to lower the access threshold of the content and technologies devised in TOPIC, so that the participating informal caregivers, who represents the future users of the platform (mainly elderly people), can access the platform more easily. In the context of this project, this also includes methodology to assist hardware and software rollouts. Depending on slightly different situations in all three countries (France, Austria and Germany), there is also a slight variation between the methodologies utilised by the three countries. We present this and the associated reflections in the document.
  • D4.1 –  Evaluation plan (Public Report, 31 December 2014)
    This deliverable details the evaluation plan, data collection methods and the feedback process employed during the TOPIC user testing. The evaluation plan was prepared to be used across the three pilot testing countries (Austria, France and Germany). This deliverable is extremely important for the testing phase of the project, as it sets out the main guidelines that partners should follow in performing the tests. It is necessary to define adequate evaluation strategy to analyze if TOPIC CarePortfolio’s utility and functionality to comply with the User-Centered Design (UCD) approach employed in the project as well as with the project objectives.
  • D4.2 – Usability test analysis (Public Report, 31 March 2015)
    This deliverable accounts for outcomes from WP4 (Evaluation): it describes the results of the first and second round usability tests conducted across the three countries participating in the project. The tests assessed the first prototypes of TOPIC CarePortfolio and focused on the interaction between the project participants and the TOPIC CarePortfolio features. These results are the basis for the planning of the TOPIC longitudinal studies to be started at the beginning of the summer 2015. The present document briefly describes the results collected across these countries, reflects on the differences between the test tasks performed in Austria, France, and Germany, and informs about the users who participated in the usability tests. This deliverable is organised as follows: Section 2 presents the results of the first round usability tests organised in Austria, France, and Germany. Section 3 is focusing on the second round usability tests realised in the same three countries. Additionally to this deliverable, the D4.3 will detail the exact results of the longitudinal studies in all partner countries in month 36 of the project. For example texts mentioned in the Appendix please contact Hilda Tellioglu.
  • D4.3 – Field evaluation results (Public Report, 31 May 2016)
    This deliverable incorporates the main outcomes from WP4 (Evaluation): It covers the description of the exact and detailed results derived from the Longitudinal Studies (LS) conducted in three partner countries. It presents thoroughly the LS flow starting from the development of the methodology, to the description of the tools for gathering and fixing the issues occurred during the tests and the step-by-step deep analysis and depiction of the running of longitudinal tests in three partner countries.  This deliverable is strongly linked with the outcomes from the WP1 (Identification of use context), WP2 (CarePortfolio technical development) and WP3 (CarePortfolio contents and service infrastructure). The content of the present document makes reference in particular to the D2.1 and D2.4 that focus on the overall presentation of the prototypes and main platform’s features. It is also intertwined with the D3.1 that presents and details the different types of modules that are presented on the TOPIC CarePortfolio. The whole development of the TOPIC’s service infrastructure was also based on the requirement analysis from WP1. To sum the user evaluation results in this longitudinal study, the TOPIC CarePortfolio is a very well designed and developed interactive, modern, online social platform to support informal caregivers burdensome life with several challenges by different means: by providing them a secure platform to reach out to other caregivers and health care professional; to easily access first-hand trustworthy information on care as well as on care-related legal and practical issues; to share and exchange with peers; and to feel understood, connected and not lonely. As the TOPIC consortium we are very pleased to have achieved the challenging goal of supporting informal caregivers via an online platform like the TOPIC CarePortfolio.
  • D5.1 – Exploitation and dissemination plan (Public Report, 30 September 2013)
    This plan provides information on the dissemination activities to be carried out throughout the project development and their benefits to private and public affairs. It defines and details the strategies and procedures necessary to reach all relevant audiences to the project. In this document we present the general rules we apply in dissemination process in the project, introduce the communication tools in detail and report on the dissemination activities.
  • D5.2 – Dissemination and exploitation report I (Restricted Report, 31 January 2014)
    This deliverable shows all dissemination and exploitation activities in TOPIC in the period between July 2013 and December 2013. For details please contact Hilda Tellioglu.
  • D5.3 – Dissemination and exploitation report II (Restricted Report, 12 July 2014)
    This deliverable shows all dissemination and exploitation activities in TOPIC in the period between January 2014 and June 2014. For details please contact Hilda Tellioglu.
  • D5.4 – Dissemination and exploitation report III (Restricted Report, 3o June 2015)
    This deliverable shows all dissemination and exploitation activities in TOPIC in the period between July 2014 and June 2015. For details please contact Hilda Tellioglu.
  • D5.5 – Dissemination and exploitation report IV (Restricted Report, 31 July 2016)
    This deliverable shows all dissemination and exploitation activities in TOPIC in the period between July 2015 and July 2016. For details please contact Hilda Tellioglu.
  • D5.6 – Development of a business plan (Restricted Report, 31 May 2016)
    The prevailing service model for care giving at home is that family members are providing a major portion of the necessary long-term care. When needed, family caregivers (so called informal caregivers) can receive help (mostly on an hourly basis) from professional social care services. Informal caregivers, i.e., family and friends, remain the most important group of providers. It is estimated that 50-90% of the responsibility for the long-term care of elderly is taken by informal caregivers. However, their role is poorly recognised, their needs are unknown, and they have diminutive access to the available formal services. Social, psychological and educational interventions are among the best strategies for informal carers to manage the pressure of care. In this context, new services enabled by information and communication technologies could support individuals more effectively and efficiently than traditional assistances. Technology-supported assistive services for informal caregivers are limited to various alarm and emergency services. These services and products are technologically minor advanced, and there is no integration of the systems and additional services like knowledge transfer and communication possibilities. After an analysis of the market perspective this deliverable D5.6 presents a business model and a business plan from a German perspective by including relevant details concerning the European perspective. For more information please contact Hilda Tellioglu.
  • D6.1 – Detailed project plan (Restricted Report, 30 September 2013)
  • D6.2 –  Quality handbook (Public Report, 04 April 2014)
    This handbook contains information that concerns the proper day-to-day running of the TOPIC project, and aims at promoting quality assurance. Quality assurance (QA) in TOPIC is not a one- time activity, but is fully integrated into the project structure and procedures. Where necessary, this handbook makes reference to the relevant project’s documents such as Grant Agreement and Annexes including Description of Work (DoW) and Consortium Agreement (CA).
  • D6.3 – Management report I (Restricted Report,  28 Februar 2014)
    This deliverable reports management activities of the TOPIC project between May 2013 and December 2013. The structure of the deliverable involves first a report on the management activities, then the provision of detailed data, on a WP-basis, of the human resources spent by the partners. Finally the details of all the partners’ expenditures in this period are provided. For details please contact Hilda Tellioglu.
  • D6.4 – Management report II (Restricted Report, 31 August 2014)
    This deliverable reports management activities of the TOPIC project between January 2014 and June 2014. The structure of the deliverable involves first a report on the management activities, then the provision of detailed data, on a WP-basis, of the human resources spent by the partners. Finally the details of all the partners’ expenditures in this period are provided. For details please contact Hilda Tellioglu.
  • D6.5 – Management report III (Restricted Report, 31 August 2015)
    This deliverable reports management activities of the TOPIC project between July 2014 and June 2015. The structure of the deliverable involves first a report on the management activities, then the provision of detailed data, on a WP-basis, of the human resources spent by the partners. Finally the details of all the partners’ expenditures in this period are provided. For details please contact Hilda Tellioglu.
  • D6.6 – Final report (Restricted Report, 31 August 2016)
    This deliverable reports management activities of the TOPIC project between July 2015 and July 2016. The structure of the deliverable involves first a report on the management activities, then the provision of detailed data, on a WP-basis, of the human resources spent by the partners. Finally the details of all the partners’ expenditures in this period are provided. For details please contact Hilda Tellioglu.

Scientific publications

2016

  • Paskuda, M., Lewkowicz, M., (2016). Anonymity Interacting with Participation on a Q&A site, AI&Society journal, 2016, Springer, pp. 1-13.
  • Tixier, M., Lewkowicz, M. (2016). Counting on the Group: Reconciling Online and Offline Social Support among Older Informal Caregivers. In: Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. ACM, 2016. p. 3545-3558.
  • Pinatti de Carvalho, A. F.,Tellioğlu, H., Hensely-Schinkinger, S., Habiger, H. (2016). “Supporting Informal Carers’ Independency through Coordinated Care”, Proceedings of the 12th International Conference on the Design of Cooperative Systems (COOP 2016), May 23-27, Trento, Italy.
  • Tellioğlu, H. (2016). “Elderly Carers, Technologies, Privacy and Data Protection: Challenges in Matching User Needs and Ethics Issues”, Presentation at and Organisation of the Interactive Workshop at the AAL Forum 2016, September 26-28, St. Gallen, Switzerland.
  • Tellioğlu (2016). “User Interaction Design for Elderly”, Keynote at the Symposium on Challenges and Experiences in Designing for an Aging Society. Reflecting on concepts of age(ing) and communication practices, at the 12th International Conference on the Design of Cooperative Systems (COOP 2016), May 23-27, Trento, Italy.
  • Tellioğlu, H., Pinatti de Carvalho, A. F., Habiger, H. (2016). “Alternatives and Redundancy: Interaction Design of the TOPIC CarePortfolio Landing Page”, Proceedings of the Symposium on Challenges and Experiences in Designing for an Aging Society. Reflecting on concepts of age(ing) and communication practices, at the 12th International Conference on the Design of Cooperative Systems (COOP 2016), May 23-27, Trento, Italy.
  • Tellioğlu (2016). “Socially Embedded Environments for an Aging Society”, Panelist at the Symposium on Challenges and Experiences in Designing for an Aging Society. Reflecting on concepts of age(ing) and communication practices, at the 12th International Conference on the Design of Cooperative Systems (COOP 2016), May 23-27, Trento, Italy.
  • Schorch, M., Wan, L., Randall, D., Wulf, V. (2016) “Designing for Those who are Overlooked. Insider Perspectives on Care Practices and Cooperative Work of Elderly Informal Caregivers”, at the 19th ACM conference on Computer-Supported Cooperative Work and Social Computing (CSCW), February 27–March 2, 2016, San Francisco. (available here)

2015

2014

  • Tixier , M., Lewkowicz, M. (2014) “Identification of Key Factors for Building a Support Network for Spousal Caregivers of Alzheimer’s Disease Patients”, in GROUP 2014 Workshop on Collaboration and Coordination in the Context of Informal Care (CCCiC GROUP 2014), Sanibel Island, FL, USA, November 9, 2014.
  • Pinatti de Carvalho, A. F., Glanznig, M., Hensely-Schinkinger, S., Tellioglu, H. (2014) “Elaborating on Interaction Mechanisms for TOPIC – The Online Platform for Informal Carers”, in GROUP 2014 Workshop on Collaboration and Coordination in the Context of Informal Care (CCCiC GROUP 2014), Sanibel Island, FL, USA, November 9, 2014.
  • Tixier , M., Lewkowicz, M. (2014) “L’observation des pratiques d’un accueil de jour à l’initiative d’aidants familiaux comme inspiration pour concevoir une plate-forme de soutien social sur l’Internet”, in Journées d’étude en Télésanté (JetSan 2014), 25-26 June, Troyes, France.
  • Tellioglu, H., Lewkowicz, M., Pinatti De Carvalho, A. F., Breskovic, I., Schinkinger, S., Tixier, M. (2014) “Collaboration and Coordination in the Context of Informal Care (CCCiC): Concepts, Methods, and Technologies”, Workshop on the International ACM Conference on Supporting Groupwork (GROUP 2014), November 9-12, 2014, Sanibel, FL, USA, ACM.
  • Pinatti De Carvalho, A. F., Tellioglu, H., Schinkinger S., Breskovic, I. (2014) “Designing for Informal Carers’ Social Coordination Needs”, Workshop on The Role of Artefacts in Social Coordination at the 11th International Conference on the Design of Cooperative Systems (COOP 2014), 27-30 May, Nice, France.
  • Schinkinger, S. and Tellioğlu, H. (2014) “Design Implications to Systems Supporting Informal Caregivers’ Daily Life”, in HCI International 2014, 22-27 June, Heraklion, Greece. (available here)
  • Tellioglu, H., Lewkowicz, M., Pinatti De Carvalho, A. F., Breskovic, I., Schorch, M. (2014) Proceedings of the ACM CSCW Workshop on Collaboration and Coordination in the Context of Informal Care, February 15, Baltimore, MD, USA, ACM, ISSN 1021-73643, Institut für Gestaltungs- und Wirkungsforschung, Nr. 18, February 2014.
  • Schinkinger, S., de Carvalho, A. F. P., Breskovic, I., Tellioğlu, H. (2014) “Exploring Social Support Needs of Informal Caregivers”, in CSCW 2014 Workshop on Collaboration and Coordination in the Context of Informal Care (CCCiC CSCW 2014), Baltimore, MD, USA, February 15, 2014. (download the paper here)
  • Tixier, M., Lewkowicz, M. (2014) “Respite that fits our need”, in CSCW 2014 Workshop on Collaboration and Coordination in the Context of Informal Care (CCCiC CSCW 2014), Baltimore, MD, USA, February 15, 2014. (download the paper here)
  • Tellioğlu, H., Lewkowicz, M., de Carvalho, A. F. P., Breskovic, I., Schorch, M. (2014) “Collaboration and Coordination in the Context of Informal Care (CCCiC CSCW 2014)” in CSCW Companion ’14 Proceedings of the Companion Publication of the 17th ACM Conference on Computer Supported Cooperative Work & Social Computing, pp 339-342, ACM New York, NY, USA. (available here)

2013

  • Breskovic, I., de Carvalho, A. F. P., Schinkinger, S. and Tellioğlu, H. (2013) “Social Awareness Support for Meeting Informal Carers’ Needs: Early Development in TOPIC,” in Korn, M., Colombino, T. and Lewkowicz, M. eds., Adjunct Proceedings of the 13th European Conference on Computer Supported Cooperative Work (ECSCW 2013), Paphos, Cyprus, Aarhus, Denmark: Department of Computer Science Aarhus University, 3-8.
  • de Carvalho, A. F. P., Schinkinger, S., Breskovic, I. and Tellioğlu, H. (2013) “Technology for Work-Life Balance in Terms of Informal Care Work,” in ECSCW 2013 Workshop “CSCW at the Boundary of Work and Life, Paphos, Cyprus, 1-6. (download the paper here)
  • Schinkinger, S., Tellioğlu, H., de Carvalho, A. F. P. and Breskovic, I. (2013) “TOPIC: Nutzerorientierte Entwicklung einer unterstützenden Plattform für pflegende Angehörige” [poster], at pflegekongress13, Vienna, Austria. (download the poster or the extended proceedings)